Delhi HC seeks rare disease funding
Analysis based on 8 articles · First reported Jun 02, 2026 · Last updated Jun 06, 2026
The event highlights the financial burden of rare diseases and the role of government policies in healthcare funding. A positive outcome for Sanskriti Bhagat could set a precedent for similar cases, potentially increasing demand for specialized medical services from entities like Apollo Hospitals and influencing government healthcare spending and policy implementation.
A three-year-old girl, Sanskriti Bhagat, suffering from LRBA deficiency, has petitioned the India — Delhi High Court for urgent financial assistance of Rs 40 lakh from the India — India for a life-saving bone marrow transplant. The petition, filed through her father, argues that despite eligibility under the National Policy for Rare Diseases, 2021, and an enhanced funding limit of Rs 50 lakh by the Bangladesh — Ministry of Health and Family Welfare, no funds have been released. Doctors at Apollo Hospitals, Chennai, have recommended the haploidentical transplant, estimating the cost at Rs 40 lakh. All India Institute of Medical Sciences, New Delhi has acknowledged its inability to provide the specialized treatment. The petitioner asserts that the denial of funds violates Articles 14 and 21 of the Constitution of India, which guarantee the right to life and timely medical treatment. Amit Shah of the India — Delhi High Court has sought a response from the India — India, with the matter scheduled for further hearing on June 8.
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